I have a rare congenital bone disorder called Kniest dysplasia. This disorder can cause all sorts of other conditions including arthritis, scoliosis, dwarfism, blindness and deafness. Sadly, I have them all.
Ever since we got this van I definitely feel like I’ve changed for the better and even my mum agrees. Before Northcott, I was a hermit staying in my bedroom every single day only leaving for school and now I’m rarely at home and my bedroom is completely covered in dust and cobwebs. Not really, but I’m sure you know what I mean.
Before the van I was limited to public transport or where my mum could take me. This meant if venues or planned activities weren’t accessible via public transport or if the weather was bad I had to miss out.
Since we’ve had the van I’ve been able to go to Little Big Shots Sydney, Sweet Expo Sydney and the filming of the new TV show ‘Game of Games’. I have also been able to go out Saturdays with a support worker which I’ve never done before. The van has meant that I have been able to be more independent and more involved in activities while providing my mum with a break from driving me around. I’m already looking forward to future events that have been planned.
I want to say another big thank you to everyone that helped us get the van. You all might not know it, but you have truly changed the lives of me and my family for the better. Thank you for reading this and I love you all, my Northcott family.
Accessibility and Inclusivity
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